2022 Research Fund Approved by Board

We are pleased to report that the Trustee Board of AMEND (ACC Support’s parent charity) has approved a total of £15,000 for the 2022 research award, specifically for research projects related to adrenocortical cancer.  Please visit our website for more information on the application process.

2021 Annual Information Day for ACC

AMEND’s 2022 Annual Patient Information Day, that welcomes those affected by ACC, will be held at the Holiday Inn, 25 Aytoun Street, Manchester M1 3AE, on Saturday 7th May.  We would love to see as many of our members and friends there as possible.  For more information on the programme and local hotels, as well as to book your spaces, please visit our dedicated webpage.

Survey of ACC Patient Pathways to Diagnosis

If you have or have had adrenocortical cancer and live in the UK, then you can help to improve the patient pathway to diagnosis and treatment!   Please take 5-10 minutes to complete a new survey (developed collaboratively between ACC Support UK and the Clinical Committee of the Society for Endocrinology) to help us gain a snapshot of the current patient pathway for people diagnosed with adrenocortical cancer in the NHS.  Answers will be used to help improve this pathway for the future. Thank you for Continue reading →

Elliot Dallen Research Award for ACC

The Elliot Dallen Trust has committed £10,000 annually for the next three years, to help fund research into adrenocortical cancer.  The Elliot Dallen Trust was set up by the family and friends of the late Elliot Dallen, who had ACC.  The Research Awards are administered through AMEND, our umbrella charity and the 2022 round deadline is 31 August, 2022.  We thank the Trust for their commitment to ACC research. — For information on the AMEND Research Awards, visit the AMEND website: http://www.amend.org.uk/healthcare…/amend-research-fund/ For information on Continue reading →

Board Welcomes ACC Trustee

The Board of Trustees of AMEND were pleased to co-opt and welcome ACC patient and representative Bob Millinship to the Board. Read more here

2021 ACC Research Award Goes to Dr Cristina Ronchi (B’ham)

The 2021 AMEND Research Fund Awards featured an award for ACC researcher, Dr Cristina Ronchi from the University of Birmimgham.  Dr Ronchi receives £9,645 for her project entitled: Targeted DNA sequencing of circulating cell-free DNA for prognosis and surveillance of adrenocortical carcinoma. Click here to read more

Annual Patient Information Day 2021 Success

The AMEND Annual Patient Information Day was held in person on Saturday 16th October, and welcomed people with a variety of different rare endocrine diseases and cancer, including ACC. It was a wonderful day of friendship and positivity, not least due to our amazing speakers, as evidenced by the superb feedback we have received.  We give you a round-up of the day and some of the links that you may need.  Please note that none of our sessions were recorded to protect patient privacy. “Absolutely super Continue reading →

We’re now on Instagram!

You can now follow ACC Support UK on Instagram.  Visit https://www.instagram.com/accsupportuk/ and click follow.    

New Oxford Study on ACC Survival

Comparative performances of nomograms and conditional survival after resection of adrenocortical cancer BJS Open, 2021, 5(1), zraa036 Click here to read the study  

New Date for Annual Information Day

Due to the continued risk from the Coronavirus pandemic, the 2021 Annual Patient Information Day has been moved from May to October.   Click here for more information