Living with ACC


Living with a rare cancer is challenging.  Some people cope better than others, but most people will have periods of low mood at some point along the way.  It is now better recognised that overall health depends upon both physical and emotional health.  For this reason, both AMEND and the NET Patient Foundation offer a free telephone counselling service.  In addition, our Counsellors are sometimes available for face-to-face sessions at our free events.  See our websites for more details.

It should also be remembered that hormones secreted in large quantities by ACCs can also cause mood changes.  Partners and family members of patients should bear this in mind as much as the pressure of having cancer.  Patients should discuss any such concerns with their doctor.


Patient Experience Film:  Talking About ACC – Living with ACC