2023 Annual Patient Information Day

Saturday 20th May

NCVO, Regents Wharf, 8 All Saints St, London N1 9RL


We enjoyed a sunny day filled with learning and friendship at the 2023 Annual Patient Information Day.  You can read all about it in our News Section


We do not film our sessions in order to protect patient privacy.  Some slides and handouts are available to download in the article via the link above.


Those people who failed to cancel their tickets more than 2 weeks prior to the event or who did not turn up on the day are asked to donate £50 per ticket to offset the cost to AMEND of your unused place(s).  Such actions waste valuable charity funds that could be put to good use in our activities to support patients in need, and risk the future of these free events.

The 2023 Programme

09:30-10:00  Registration and refreshments

10:00-10:05  Introductions and housekeeping

10:05-10:30  Welcome and overview of diseases and activities (Jo Grey, AMEND CEO)

10:30-12:30  Disease-specific Q&A sessions

12:30-14:00  Lunchtime

14:00-15:30  Living with Rare Endocrine Diseases Session

15:30-16:00  Refreshment Break

16:00-17:00  Health and Fitness Session

  • 16:00-17:00  All-ability Beginner’s Seated and Unseated yoga (Lizzie Dunn)

17:00  End of Conference