Tag Archives: Adrenocortical Cancer

2024 Patient Information Day

March 25, 2024 by accsupport314
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This year’s Annual Patient Information Day, held by AMEND and including all those affected by ACC, will be held on Saturday 1st June, in central Birmingham.  Come along and benefit from a 2-hour Q&A session with an expert in ACC, along with other, relevant and interesting informational sessions.  Tickets are free but donations are welcomed. > Click here for more information and to book

NETs in RETS

September 27, 2023 by accsupport314
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November 10th each year is NET Cancer Day, initiated by the International Neuroendocrine Cancer Alliance, of which AMEND (and therefore ACCSUK) is a member representing genetic neuroendocrine tumour syndromes.  To better explain the link between NETs and RETS (rare endocrine tumours and syndromes), join us for our webinar, NETs in RETS, with Professor Karim Meeran on Thursday 9th November from 18:00-19:00. On Thursday 9th November, 2023, Professor Karim Meeran from Imperial in London, will give an overview of the relevance of NET Cancer Day to Continue reading →

2023 Annual Patient Information Day Success

May 26, 2023 by accsupport314
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The sun was shining on Saturday 20th May in London for our Annual Patient Information Day, and our venue beside the Regent’s Canal was the perfect place to receive all the members of our rare endocrine diseases communities who had booked to attend. AMEND CEO, Jo Grey, began the proceedings promptly at 10am, giving an overview of the 20-year history of AMEND, of all the diseases we support, and of the plan for day.  Next it was time for the 2-hour disease-specific Q&A sessions, for Continue reading →

ACC Support Medical Advisory Team Changes

February 7, 2023 by accsupport314
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We are delighted to welcome Dr Cristina Ronchi to the ACC Support UK Medical Advisory Team.  Cristina, a Consultant Endocrinologist and researcher who leads the Adrenal Tumour Service at Queen Elizabeth Hospital Birmingham, is already well-known to ACC Support UK, having been the recipient of 2 Annual Awards for ACC Research, including the 2022 Elliot Dallen Award.  She has also attended our Annual Patient Information Day on several occasions and will do again this year to speak directly with ACC patients about diagnosis, treatments and Continue reading →

Do you have a story to tell?

January 26, 2023 by accsupport314
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Patient stories are some of the most popular reads for those newly diagnosed with ACC. Some lovely people have already starred in films about ACC, but for AMEND’s* 20th anniversary, we’re aiming to include 20 written stories on a new page to be constructed on this website.   Do you have a story to tell about you and your experience of diagnosis, treatment and life with ACC? We’d love for you to write it down.   We have a template for you to use if Continue reading →

2023 Patient Information Day

January 26, 2023 by accsupport314
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AMEND’s 2023 Annual Patient Information Day, that welcomes those affected by ACC, will be held in central London, on Saturday 20th May.  Dr Cristina Ronchi from Birmingham will be there to answer all your questions on ACC, and there are plenty of other interesting sessions to participate in.  We would love to see as many of our members and friends there as possible.  For more information on the programme and local hotels, as well as to book your spaces, please visit our dedicated webpage.

Dr Ronchi Receives 2022 Research Award

October 31, 2022 by accsupport314
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We are pleased to confirm that our 2022 Research Award recipient is Dr Cristina Ronchi from the University of Birmingham.  Her project, Circulating cell-free DNA-based biomarkers for improved management of adrenocortical carcinoma, continues her previous work in this area.  Dr Ronchi receives a total of £12,435 (£10,000 Elliot Dallen ACC Research Award, and £2,435 of the Cerys Akarca ACC Research Award).

Elliot Dallen Trust Presents Cheque

May 30, 2022 by accsupport314
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AMEND CEO Jo Grey was delighted to meet Annabel Dallen recently, who presented Jo with a cheque for £10,000 as the 2022 Elliot Dallen Research Award for  ACC.  Annabel is sister of Elliot, who had ACC and who died in September 2020 aged just 31.  Elliot’s family set up the Elliot Dallen Trust in his memory.

2022 Research Fund Approved by Board

March 21, 2022 by accsupport314
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We are pleased to report that the Trustee Board of AMEND (ACC Support’s parent charity) has approved a total of £15,000 for the 2022 research award, specifically for research projects related to adrenocortical cancer.  Please visit our website for more information on the application process.

2021 Annual Information Day for ACC

March 21, 2022 by accsupport314
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AMEND’s 2022 Annual Patient Information Day, that welcomes those affected by ACC, will be held at the Holiday Inn, 25 Aytoun Street, Manchester M1 3AE, on Saturday 7th May.  We would love to see as many of our members and friends there as possible.  For more information on the programme and local hotels, as well as to book your spaces, please visit our dedicated webpage.