Author Archives: accsupport314

2023 Patient Information Day

January 26, 2023 by accsupport314
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AMEND’s 2023 Annual Patient Information Day, that welcomes those affected by ACC, will be held in central London, on Saturday 20th May.  Dr Cristina Ronchi from Birmingham will be there to answer all your questions on ACC, and there are plenty of other interesting sessions to participate in.  We would love to see as many of our members and friends there as possible.  For more information on the programme and local hotels, as well as to book your spaces, please visit our dedicated webpage.

Dr Ronchi Receives 2022 Research Award

October 31, 2022 by accsupport314
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We are pleased to confirm that our 2022 Research Award recipient is Dr Cristina Ronchi from the University of Birmingham.  Her project, Circulating cell-free DNA-based biomarkers for improved management of adrenocortical carcinoma, continues her previous work in this area.  Dr Ronchi receives a total of £12,435 (£10,000 Elliot Dallen ACC Research Award, and £2,435 of the Cerys Akarca ACC Research Award).

Elliot Dallen Trust Presents Cheque

May 30, 2022 by accsupport314
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AMEND CEO Jo Grey was delighted to meet Annabel Dallen recently, who presented Jo with a cheque for £10,000 as the 2022 Elliot Dallen Research Award for  ACC.  Annabel is sister of Elliot, who had ACC and who died in September 2020 aged just 31.  Elliot’s family set up the Elliot Dallen Trust in his memory.

2022 Research Fund Approved by Board

March 21, 2022 by accsupport314
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We are pleased to report that the Trustee Board of AMEND (ACC Support’s parent charity) has approved a total of £15,000 for the 2022 research award, specifically for research projects related to adrenocortical cancer.  Please visit our website for more information on the application process.

2021 Annual Information Day for ACC

March 21, 2022 by accsupport314
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AMEND’s 2022 Annual Patient Information Day, that welcomes those affected by ACC, will be held at the Holiday Inn, 25 Aytoun Street, Manchester M1 3AE, on Saturday 7th May.  We would love to see as many of our members and friends there as possible.  For more information on the programme and local hotels, as well as to book your spaces, please visit our dedicated webpage.

Survey of ACC Patient Pathways to Diagnosis

January 17, 2022 by accsupport314
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If you have or have had adrenocortical cancer and live in the UK, then you can help to improve the patient pathway to diagnosis and treatment!   Please take 5-10 minutes to complete a new survey (developed collaboratively between ACC Support UK and the Clinical Committee of the Society for Endocrinology) to help us gain a snapshot of the current patient pathway for people diagnosed with adrenocortical cancer in the NHS.  Answers will be used to help improve this pathway for the future. Thank you for Continue reading →

Elliot Dallen Research Award for ACC

January 17, 2022 by accsupport314
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The Elliot Dallen Trust has committed £10,000 annually for the next three years, to help fund research into adrenocortical cancer.  The Elliot Dallen Trust was set up by the family and friends of the late Elliot Dallen, who had ACC.  The Research Awards are administered through AMEND, our umbrella charity and the 2022 round deadline is 31 August, 2022.  We thank the Trust for their commitment to ACC research. — For information on the AMEND Research Awards, visit the AMEND website: http://www.amend.org.uk/healthcare…/amend-research-fund/ For information on Continue reading →

Annual Patient Information Day 2021 Success

November 29, 2021 by accsupport314
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The AMEND Annual Patient Information Day was held in person on Saturday 16th October, and welcomed people with a variety of different rare endocrine diseases and cancer, including ACC. It was a wonderful day of friendship and positivity, not least due to our amazing speakers, as evidenced by the superb feedback we have received.  We give you a round-up of the day and some of the links that you may need.  Please note that none of our sessions were recorded to protect patient privacy. “Absolutely super Continue reading →