2021 Annual Information Day


COVID-19:  due to the vulnerability of many of those attending this event, we will require proof of vaccination or negative LFT before entering:

  • Vaccinations: these are logged on the NHS App on your phone (not the Test & Trace app by Serco).  If you do not have the app, you can also request printed evidence of vaccination via NHS online, or by phoning 119.  You can find more information and useful links on vaccinations on our website.
  • Lateral Flow Tests (LFTs):  If you have not been vaccinated (or your last vaccine was given less than 2 weeks before the event), we will require evidence of a negative LFT test, taken not more than 2 days before the event.  You can order free tests from the government website.  The result must be logged via the NHS App.  We will also require a photo of the test strip including the result window and test code number.
  • Positive Tests:  If you have been in close contact with someone with covid-19 or have tested positive by LFT or PCR tests in the week preceding, please do not come to the event.  Many of our members are clinical extremely vulnerable and we need to keep everyone as safe as possible.  For more information on signs and symptoms of covid-19, please visit the AMEND website.


[This programme is draft and subject to change without notice]


09:30-10:00       Arrival and refreshments

10:00-10:30       Welcome and Overview of AMEND’s (incl. PPSUK/AASUK) activities (CEO, Jo Grey)

10:30-12:30       Disease-specific Patient Experience & Q&A sessions (Dr Cristina Ronchi, Birmingham)

12:30-14:00       Lunch break & Exhibition tables

14:00-15:30       AMEND 2019-2020 Research Awards updates (incl. Dr Ronchi on her research into ACC)

15:30-16:00       Refreshment break

15:30-16:00       Diet in endocrine disease

16:00-17:00       Beginners’ Yoga for all abilities (standing or seated) (with Lizzie Dunn)

17:00-18:00       Celebration

(Our Rareminds Counsellors will be available throughout the day for one-to-one or group counselling sessions)