Our Annual Patient Information Days are large, friendly gatherings of around 100 patients affected by all the rare endocrine conditions that AMEND covers, including ACC. A variety of talks are given by a range of medical experts, including specialised sessions for each disease. A creche and activities for children are usually provided.
Our event changes annually between venues in central London and elsewhere in the UK.
Some feedback:
“….it was good to chat with [the medical speakers]. You assembled an excellent panel of speakers who are open and approachable as well as knowledgeable. We also met some interesting people among the other delegates. The venue was good too, and the dinner was excellent.” (patient)
“Brilliant day and so well organised. Thrilled to have been able to attend. Topics so relevant and make you feel in control of your condition. Thank you.” (patient)
“Having attended the event I feel support in meeting others” (patient)
Click on a link below for more information about upcoming and past Information Days:
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2025 Annual Patient Information Day (31 May 2025, London)
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2024 Annual Patient Information Day
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2023 Annual Patient Information Day
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2022 Annual Patient Information Day
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2021 Annual Patient Information Day
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2020 Virtual Patient Information Day
Ts & Cs:
Cancellations: cancellations should be made no later than 2 weeks’ prior to this event. Cancellations after this time will incur a charge corresponding to the full price of your place (approx. £60).
Children: Please note that there is no creche provided at this event due to cost and previous years’ no-shows and late cancellations. Children under 12 or those 12 and over who are unaware of your/their disease should not be brought to the venue for this event under any circumstances. We are not insured for children to be on the premises during our event. Your understanding is appreciated.