We know that being diagnosed with any cancer often comes as a shock. Being diagnosed with a rare cancer like adrenocortical cancer (ACC) can also cause a lot of distress, confusion, and fear. Rest assured that ACC Support UK is here to help you to understand your cancer and its treatment, as well as to provide you with plenty of support. As a newly diagnosed patient with ACC, we would recommend starting with the resources listed below.
Get Informed:
Research shows that patients often cope better with their diagnosis and treatment when they know about their disease. Our information resources and events are freely accessible. We suggest starting here:
- Information on ACC (Diagnosis, Treatment, Life with ACC)
- Annual Patient Information Day
- Specialist Nurse Helpline
- Patient Stories
Get Support:
We have been providing support to our ACC community for years and we know how important it has become to both ACC sufferers and their loved ones alike. Here are the support services available:
- Peer to Peer Meetings
- Private ACC Facebook Group*
- Specialised Psychological Counselling Service*
Join ACC Support UK:
Services with an * are available only to registered members of ACC Support UK. It is free to join our Patient Support Group to access the following membership benefits:
- Inclusion in our private Facebook Group for UK patients and family members
- Access to our free psychological counselling service provided by qualified and specialist psychologists from Rareminds
- Free member pack including all relevant patient information books
ACC Support UK is a disease-specific patient group under the umbrella of registered charity, AMEND. In addition, another registered charity, NCUK, provides the specialist nurse helpline for ACC Support UK. All other services are provided by AMEND.