People with rare diseases and cancers like ACC, often find it helpful to hear about the experiences of others with the same disease. In addition, many people find it a rather cathartic or healing experience to write down their experiences of their disease.
Whatever the motivation, we are always happy to receive your story and have developed a Word template below with some prompt questions in case you’re not sure where to start. Please send your story* in to info@amend.org.uk
*stories may be edited to preserve anonymity where required
Stories
Emma
I remember feeling relieved to begin with that I had not been going crazy and there was a reason why I had been struggling for nearly 3 years.
Maisy
My family, friends and partner have been amazing, but have also been put on this rollercoaster with me, and they too have no choice.
Ann
Whilst at work before my operation I received a phone call from my endocrinologist stating it was looking like adrenocortical cancer (ACC) from the results of the tests. However, this would not be confirmed until after the surgery.